What it's like to be the parent of a child with a learning disability. The blog was created in 2005 and discusses anything to do with Down Syndrome

Friday, 21 September 2012

down's dad's down time

I looked up this morning and smiled at a fellow passenger. We gave each other a smug look, because we were both reading the same paper; one we'd bought, not the freesheet that's given out. Then I realised I'd seen the same guy every day this week, because I'd got the same train, in the same carriage, every day. Stan's been on the school trip and I've been able to spend quality time with his mum and brother, catch up on my sleep, watch some TV, go out, and spend more time at work. All the things that I imagine I'd do if Stan didn't have a learning disability. But I can only imagine Stan putting his hand to his mouth and saying, as he does, "boooooring". I've become a boring old fart. And I've loved every minute. So he's on his way back, and all I can say, is thank goodnesss, because Stan can sometimes bring chaos, and I hope that's keeping me a little younger. Next week, if I see newspaper guy, I'm going to ignore him.

Thursday, 6 September 2012

Will it all start again on Monday?

Thanks go out to Stephen Adams at the Daily Telegraph. He (quite rightly) took a broadside from a mother about his use of language when describing our children, especially in relation to pregnancy testing. Stephen's reply is so good and so thought-through, that I think he would have done it any time, not just because of what's going on in East London. 

But isn't it interesting about how everyone's being very well behaved during the Paralympics? Even Jimmy Carr, well known for punchlines such as "**** off, you retard" has been on the Last Leg show on Channel 4, desperately trying to claw some credibility with his new-found disability credentials. He didn't need to say he's ashamed of himself. I saw him being ashamed of himself.

So, my big question is: Are these people just biding their time and it'll all start up again after the closing ceremony on Sunday? People being lazy, cruel or unhelpful about our children. But let's hope that one Paralympic legacy is that the nation remembers how disabled people, including those with a learning disability, made us all feel proud. And not from a patronising sort-of-way; but from a "time for Murderball Rugby, do you want some?" sort-of-way.

Devine, Weir, Storey, Simmonds. The names trip off the tongue and a few days ago no one had heard of them.

And here's Stan at the Paralympics on Monday. He saw the Weir-wolf pick up his second gold. History in the making.