tag:blogger.com,1999:blog-2148518185377821700.post6401083850559120963..comments2023-10-12T07:41:56.562-07:00Comments on Down's with the kids: Eight years onUnknownnoreply@blogger.comBlogger1125tag:blogger.com,1999:blog-2148518185377821700.post-73848647870924558682010-05-24T13:53:23.457-07:002010-05-24T13:53:23.457-07:00COMMENT FROM A FRIEND
I'm a family friend of S...COMMENT FROM A FRIEND<br />I'm a family friend of Stan's Dad, and I've known Stan since he was a baby, but don't get to see him very often. And it's that fact that makes me realise just how much he has advanced in those 8 years. And it's something the parents, perhaps inevitably, don't notice so much with their daily contact with him. Stan is an enthusiastic, happy, and very loving 8 year old boy, who is growing increasingly independent, and communicates brilliantly. I say that as an objective onlooker, not directly bound up with the emotion of my own child having Downs, but by the connection of one of my very best friends having a child with Downs. And Stan's progress has been amazing - largely, I feel, because his parents have fought so hard for him to have a "normal" family and school life. They care for his every need, but never smother him. And they try to roll with the punches - such that each trip to Great Ormond Street has almost become a matter of family routine, tinged as it inevitably is with fear and anxiety. But each visit seems to produce a more positive outcome - whether that be his heart, hearing, or other development. Stan's story, and that of his larger family, should be a vision of hope for every other parent of a child with Downs. I spoke to Steve (his dad) a lot during the early days of Stan's life, which were incredibly trying for him and his wife - largely, I think, because of the fear of not knowing how it was all going to turn out. Now, I think they can dare to be more positive, as time passes, and Stan grows up. They should be very proud of all they have achieved with Stan, and I hope other parents can take heart from a success story, which started with darkness and fear, and is getting more positive by the day. RobSteve Palmerhttps://www.blogger.com/profile/13282271952457811802noreply@blogger.com