Steve Palmer's blog about his son Stanley - who has Down's Syndrome - & the extended family.
Thursday, 9 October 2014
Finally: Down's with the kids - the book
"How long have you been writing it?"
"About five years"
In truth, my answer to that question wasn't totally right. I've been chipping away at it for years, but Down's with the kids: The life and times of Stanley Matthew Palmer only really kicked into gear this summer. It was July and I was typing on the laptop on bus then tube then bus then bus then tube then bus and before I knew it, I was half way through and there was no turning back. There's even a bit in the book where a kind woman gives up her precious Metropolitan Line seat for me as I was typing standing up. It was a nightmare and at times I had to stop being Down's Dad to write about being Down's Dad.
And on Tuesday I self-published on Amazon. That took some research. (Biggest tip is to continually preview it before you're 100% ready)
But if one parent with a new diagnosis of Down's reads it, then my work is done. I was motivated to write it partly because when you find out your child has Down's or your future child will have Down's, it can be a lonely place. I hope it helps.
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Well done - great read which echoed a lot of our experiences/thoughts. I also liked your response to THAT article which was balanced and well written - not condemning like some of the other replies I saw :)
ReplyDeleteHi my name is Quwayne, otherwise known to Stanley Palmer as Mr Lazarus. I used to be he's one to one at school. I've never worked with a child with downs and it really was a pleasure to have had the opportunity To work with Stan. I hope he is well and all is well. Tell him I haven't forgtton him, will come by school and say hi soon. I will deffo be buying this book!
ReplyDeleteI also like this article, god bless him.
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